Pin It
Sunday, June 15th, 2014

Why You Shouldn’t Judge: My Son is Not a Monster. He’s Autistic.

My Son is Not a Monster. He's Autistic. via flickr

Since the day that our neighborhood pool opened Keagan has been there all day everyday. He goes up before they open to help the lifeguards set up, he swims and plays pool with other kids his age and chats it up with the staff. He only seems to come home for food. I’ve never seen him so happy and self sufficient and I was marveling just the other night about how “normal” he seems. He has kids he considers friends for the first time all year.


Unfortunately, yesterday he had a big hiccup. We are thankful that a friend was at the pool and came to get us to avoid the police being called. When asked what happened Keagan can only say, “I’m not totally sure, it happened so fast and I just sort of snapped.”


This is pretty accurate, his therapist has described his fits as him “leaving his body.” We were able to get him out of the pool and home with lots of sobbing and remorse before he finally cried himself to sleep. As a parent of a child who has these spanning swings, it is very distressing to see him lash out and to self sabotage something that is so important to him.


As a mother who has to face the accusations and whispers, it is incredibly embarrassing and heart wrenching. I feel so incredibly full of shame and helplessness. I am so angry at myself for not seeing this coming, for believing that we’d stay here on this “high.” I’m angry that I am ashamed to claim my own child at times. I’m angry that I let the looks and whispers get to me. If you are a part of our community, know someone who is a part of our community or even if you’re just a parent out there somewhere, please take the time to think about the feelings of a family with a special needs child. I absolutely do not discredit your fear or discomfort when you witness a meltdown but please please please know that behind each meltdown is a child who is simply trying his very best every day and parents who are doing the same.


Please realize that the fact that your child was born perfectly normal and healthy is a blessing. No one asks to be born with a brain wired this way; it could have been your child too. And please take a moment to talk to your children about differences, tolerance and forgiveness. Instead of perpetuating a problem by gossip, speculation and finger pointing please talk to us about your concerns. Learn about how you can be helpful in a moment of crisis. Learn that we are normal people just like you, only we’re dealing with a very visible difficulty with our child.


My son is not a monster, he knows he made a mistake and he is remorseful and heartbroken too. Because he has such difficulty writing for long periods of time he asked me to transcribe this letter for him and deliver it to the pool today. We may be banned from our community pool and we may be shunned in our neighborhood but we hope that at least a few people will read this with an open heart.



© 2014, Tiphini Axtell. All rights reserved.

More Great Stuff You'll Love:

The African Guide to Co-sleeping

10 must-read tips on co-sleeping from Africa

Breastfeeding in the Land of Genghis Khan

Colleague drank your breast milk from the work fridge again? Tales of breastfeeding in Mongolia

Many Languages, One America: 25 Proud Bilingual Children

These kids make clear what language the U.S. speaks.


Tiphini Axtell is a stay at home mom to four spunky and happy kids. When she's not busy playing taxi, being a short order cook, trying to find that elusive second shoe and advocating for her son she can be found hiding out in her closet reading a good book.

Leave us a comment!

  1. CommentsOlga   |  Wednesday, 23 July 2014 at 8:44 am

    Thanks for your article! It reminded me that indeed all of us should be more patient and kind towards each other, both children and grown-ups.

    Best regards,
    Olga (Norway /Estonia)

  2. CommentsLorraine Spencer   |  Wednesday, 10 September 2014 at 10:59 am

    The other day while my daughter and 16 year old moderately autistic son were in Subway, a lady notice how my son was talking and moved away from him to the back of the line. Had I been there, I would have told her that it doesn’t rub off and that she was totally safe to give her order. This is precisely why I wrote a song ( dedicated to him and mothers, and everyone affected by autism. Many people still don’t get it or even consider what we go through as parents and more importantly what our children are faced with in this life. Try and be a little more patient and understanding, it’s not that hard.

Notify me of follow-up comments via e-mail.
Or leave your email address and click here to receive email notifications of new comments without leaving a comment yourself.

Get weekly updates right in your inbox so you don't miss out!

A Children's Book for Raising Global Citizens

Every life is a story. It’s easier to understand someone when you know their story.

Why I Travel 13 Hours Alone with My Kids Every Chance I Get

Travelling with children, while definitely more of a mission, contradicts the old saying that “life is about the journey, not the destination.”

A Diverse Book for Preschoolers in Celebration of Multicultural Children's Book Day

A book that honestly and simply celebrates the every day diversity that children experience.

Why My African Feminist Mother Gave Me the Identity of My Father's Tribe

She gave me an identity so different from her own.

2 Children’s Books about Jamaica

Explore Jamaica with your child.

Costa Rica with Kids: Two Weeks of Family Travel

Two weeks of Pura Vida in a country with so much to offer families.

Should I Worry about My Child's Accent in Her Foreign Language?

See why Dr. Gupta takes offense to this question and where children learn accents from

How to raise trilingual kids when exposure to Dad's language is limited

My kids only get 1-2 hours of the minority language per day-help!
Unfortunately, the school and community are no longer there. The farm is being sold and there are tentative plans for a new iteration to be set up in Costa Ric...
From How I Moved to Thailand with my Family on Less than $1000
HI! I love your website! Just read your review of books that teach about culture and food! I can't wait to try some of the recipes you've share...
From Armenian Recipe: Apricot Tart
Please, refrain from using "western /western society" for anglosaxon countries. Western can be Mexico and Spain as well, anything on the west side of the world is western ...
From The West’s Strange Relationship to Babies and Sleep
We've tried to make use of, but It doesn't works by any mean...
From African Parenting: The Sane Way to Raise Children
I'm back. Sorry, I stopped caring for this magazine for a while and forgot to discuss the meat of the matter. This article, as well as the linked article from 2011, fails to discuss cultural norms ...
From What Confused Me Most about Brits
Fascinating. I have been to Germany and met this guy who was soo rude! This article explains everything!! Since all Germans are so terribly rude it should come as no surprise that I should have met ...
From Are Germans Really Rude?
@ Josep. How could you possibly comment on how Germans treat people if you have never even been there? A three-day stay in Berlin and a one day stop-over in Frankfurt was enough for me to see the ut...
From Are Germans Really Rude?
I am trying to find a Sikh triangular Nishan Sahib flag and haven't found one. Do you know where I can find on...
From Vaisakhi Craft: Make a Flag
I have tried to buy a Sikh triagular Nishan Sahib flag and had no luck. Do you know where I can find on...
From Vaisakhi Craft: Make a Flag

More Global Parenting